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International Conference
Please find below the conference programme with abstracts, powerpoint presentations and notes from the discussions. These pages are currently under construction so please bear with us as we add the information.
Deinstitutionalisation and Community Living: Outcomes and costs (DECLOC) – Project methodology and findings from the collation of national statistics on services for people with disabilities (Julie Beadle-Brown, Tizard Centre, University of Kent)
This presentation will outline the methodology of the project and the findings from the first phase of the DECLOC project – the collation and evaluation of national level statistics on the situation of people with disabilities in Europe. It will highlight some of the issues which have been raised by the project in the area of statistics on disability and outline a sample of the recommendations from the project report.
Powerpoint presentation
Presentation of findings from cost and outcome analyses (Martin Knapp, London School of Economics)
Expected cost savings have often been the prompt for changing the balance of care, whether towards or away from reliance on institutional models. This presentation will review the economic evidence on balance of care, particularly focusing on those incentives or forces which encourage a change away from heavy reliance on institutions, as well as those that slow down that process.
Powerpoint presentation
International implications of findings from study (Jim Mansell, Tizard Centre, University of Kent)
The DECLOC project provides recommendations for European organisations and Member States to help the transition from institutional systems of residential care for disabled people to one based on services in the community. These recommendations include a fourfold focus on
1. Strengthening the vision of new possibilities in the community
2. Sustaining public dissatisfaction with current arrangements
3. Creating some practical demonstrations of how things can be better
4. Reducing resistance to change by managing incentives for the different actors in the
process
Powerpoint presentation
Response from Commission to project findings – implications for EU policy and support for deinstitutionalisation (Wallis Goelen, European Commission)
This presentation considers the implications of the findings and recommendations of the DECLOC project for the European Commission and will comment on the support and commitment of the Commission to the change from institutional services to community-based services and independent living for all people with disabilities
Response from user organisations – implications for users and their families (Ivo Vykydal, Inclusion Europe)
Powerpoint presentation
Response from service providers – implications for future service provision (Brian O’Donnell, EASPD)
In late 2005, to underpin, support and facilitate the development of personalised support services and community building, EASPD launched its STEPs framework, towards person centred services and community based settings. STEPs stands for:
1. Support and Advice from Members to Members
2. Tailor made training frontline training in setting up, or changing services
3. Exchange and Promotion of good practices
STEPs is the EASPD's framework through which we hope to give service providers across Europe information, and the training & support needed to deal with the challenges ahead. We hope to facilitate the process of change and development needed for future high quality services. The three pillars on which EASPD is built, - 'Innovation, Information and Impact' – provides this framework with a firm basis as we launch this multi-annual action plan.
Powerpoint presentation
General discussion (Facilitated by Judith Klein, OS MHI)
Notes from discussion
Findings from MHEEN: implications for deinstitutionalisation and community living. (David McDaid)
The 32 country EC supported Mental Health Economics European Network (MHEEN) was established with the broad objective of developing a base for mental health economics information. It has examined a range of policy issues including the financing of mental health systems, the case for investment in preventing mental health problems and promoting mental wellbeing, looking at the impacts of poor mental health on employment and mapping service availability. This presentation will briefly describe and highlight some findings and then reflect on one key area of work: the role economic incentives play in influencing the balance between institutional and community based living across Europe.
Powerpoint presentation
WHO Mental Health Atlas & Atlas-ID (Marco Garrido-Cumbrera)
In 2001 the WHO's Department of Mental Health and Substance Abuse began the Project Atlas to collect, compile and disseminate data on mental health services and resources. WHO, supported by the Montreal Collaborating Centre, started in 2005 an Atlas on Intellectual Disabilities (Atlas-ID). The Atlas-ID has included information from 148 countries covering the 95% of the world population. The main aim is to present the most relevant findings related to people with ID including: terminology and classification; policies, programmes and legislation; financing; services; professionals and NGOs.
Powerpoint presentation
The European Autism Information System (Martin Knapp and Alvaro Ramirez)
This presentation will describe the activities of the European Autism Information System, which is seeking to pool information on prevalence, costs, data systems and knowledge about autism across the EU as a platform for improved understanding and support
Powerpoint presentation
Parallel workshops focusing on the process of deinstitutionalisation in Central and Eastern Europe
1. Policy and funding (Judy Klein, Luis Salvador-Carulla and David McDaid) Notes from discussion
2. Strategic planning (Johannes Schaedler, Luk Zelderloo and Geert Freyhoff) Notes from discussion
3. Quality of services and user involvement (Donata Vivanti, Jan Siska and Camilla Parker) Notes from Discussion.
Summary of parallel workshops and general discussion (David Towell)
Toolkit for change
Speakers biographies
Sponsor acknowledgement
Deinstitutionalisation and Community Living: Outcomes and Costs (DECLOC) project.