Centre for Health Services Studies

Excellence in Health Research

profile image for Professor Patricia Wilson PhD, MSc, BEd (Hons), RN, NDN

Professor Patricia Wilson PhD, MSc, BEd (Hons), RN, NDN

Professor of Primary and Community Care



I was appointed CHSS Professor of Primary and Community Care in April 2014 to lead the new Kent Academic Primary Care Unit (KAPCU). The unit will play a major role in ensuring that Kent will benefit from primary and community care which is a national example for quality and patient-centred care. Good primary care forms the bedrock of the NHS and leads to better health outcomes. Before joining CHSS I was a Reader in Patient Experience in the Centre for Research in Primary and Community Care at the University of Hertfordshire.

My career began in NHS community nursing - I was attracted by working with patients and families as partners in the community. My particular interest is in long term conditions management and in involving patients, carers and the public in health services at all levels - including a say in NHS structures. During the 1990’s I moved into higher education and was programme lead for the specialist community nursing degree and developed an MSc Advancing Practice in Primary Care.

In 1999 the white paper “Our Healthier Nation – Saving Lives”, first mentioned the concept of “expert patient”. This was a turning point for me, bringing together a long-held professional interest, policy agenda and some personal experience of managing a long term condition. It led to a PhD, programme of research and a series of publications charting the development of chronic disease self-management programmes both in the UK and internationally. This work helped deliver local Expert Patients Programmes, and contributed to national and international work developing self-management programmes for people with learning disabilities, sickle cell anaemia, cancer and other chronic diseases.

Over the past six years my interest in involving people in their care at self-management level has extended to the field of patient and public involvement (PPI) within NHS structures and health research. I have a national and international PPI profile and was part of a group working to establish more regionally focused and synergistic PPI by bringing together component parts of the research infrastructure – CLAHRCS, AHSN, RDS and the research networks. I co-led the PPI research theme within the newly formed CLAHRC East of England. I was a member of the Eastern Academic Health Science Network node board and advised particularly on PPI. I was appointed to the NIHR INVOLVE advisory board and Self-Management UK (formerly the Expert Patients Programme) national advisory panel in 2012, and sit on the Editorial Board of a new journal, Research Involvement and Engagement.

In my previous role I was part of the Primary Care Research Network East of England management group, with specific remit for community services research. In 2014 I was appointed Primary Care Academic Speciality Lead, Division 5, Kent Surrey and Sussex NIHR Clinical Research Network. I also sit on the editorial board of Primary Health Care Research and Development, and was recently appointed to the South East Research for Patient Benefit regional funding committee having previously served on the East of England committee.

In 2015 I was appointed as co-convenor of the International Collaboration for Community Health Nursing Research, and link with a number of international colleagues.

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Also view these in the Kent Academic Repository

Barker, R., Wilson, P. and Butler, C. (2020). Does national policy in England help deliver better and more consistent care for those at the end of life?. Journal of Health Service Research and Policy [Online]. Available at: https://doi.org/10.1177/1355819620914939.
Understanding what works, why and in what circumstances in Hospice at Home Services for End of Life Care: applying a realist logic of analysis to a systematically searched literature review (2020). Palliative Medicine [Online] 34:16-31. Available at: https://dx.doi.org/10.1177/0269216319867424.
Rees-Roberts, M., Williams, P., Hashem, F., Brigden, C., Greene, K., Gage, H., Goodwin, M., Silsbury, G., Wee, B., Barclay, S., Wilson, P. and Butler, C. (2019). Hospice at Home services in England: a national survey. BMJ Supportive and Palliative Care [Online]. Available at: http://dx.doi.org/10.1136/bmjspcare-2019-001818.
Wilson, P. and Mavhandu-Mudzusi, A. (2019). Working in partnership with communities to improve health and research outcomes. Comparisons and commonalities between the UK and South Africa. Primary Health Care Research & Development [Online] 20. Available at: https://doi.org/10.1017/S1463423619000677.
Early, F., Wilson, P., Deaton, C., Wellwood, I., Dickerson, T., Ward, J., Jongepier, L., Barlow, R., Singh, S., Benson, J., Brimicombe, J., Kim, L., Haque, H. and Fuld, J. (2019). Developing an intervention to increase REferral and uptake TO pulmonary REhabilitation in primary care in patients with chronic obstructive pulmonary disease (the REsTORE study): mixed methods study protocol. BMJ Open [Online] 9. Available at: http://dx.doi.org/10.1136/bmjopen-2018-024806.
Abrahamson, V. and Wilson, P. (2019). Positioning the six-month review in the recovery process post-stroke: The ideology of personal responsibility. Health & Social Care in the Community [Online] 27:249-259. Available at: https://dx.doi.org/10.1111/hsc.12677.
Abrahamson, V. and Wilson, P. (2019). How unmet are unmet needs post-stroke? A policy analysis of the six-month review. BMC Health Services Research [Online] 19:480. Available at: https://doi.org/10.1186/s12913-019-4210-2.
Hamilton-West, K., Bates, A., Hotham, S. and Wilson, P. (2018). Development of a training programme for primary care mental health staff to support management of depression and anxiety in long-term conditions. Primary Health Care Research & Development [Online] 20. Available at: https://doi.org/10.1017/S1463423618000658.
Bunn, F., Goodman, C., Russell, B., Wilson, P., Manthorpe, J., Rait, G., Hodkinson, I. and Durand, M. (2018). Supporting shared decision making for older people with multiple health and social care needs: a realist synthesis. BMC Geriatrics [Online] 18. Available at: https://dx.doi.org/10.1186/s12877-018-0853-9.
Butler, C., Brigden, C., Gage, H., Williams, P., Holdsworth, L., Greene, K., Wee, W., Barclay, S. and Wilson, P. (2018). Optimum hospice at home services for end-of-life care: protocol of a mixed-methods study employing realist evaluation. BMJ Open [Online] 8. Available at: http://dx.doi.org/10.1136/bmjopen-2017-021192.
Wilson, P., Mathie, E., Poland, F., Keenan, J., Howe, A., Munday, D., Kendall, S., Cowe, M., Staniszewska, S. and Goodman, C. (2018). How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation. Journal of Health Services Research and Policy [Online] 23:98-106. Available at: https://dx.doi.org/10.1177/1355819617750688.
Howe, A., Mathie, E., Munday, D., Cowe, M., Goodman, C., Keenan, J., Kendall, S., Poland, F., Staniszewska, S. and Wilson, P. (2017). Learning to work together - lessons from a reflective analysis of a research project on public involvement. Research Involvement and Engagement [Online] 3:1-12. Available at: http://dx.doi.org/10.1186/s40900-016-0051-x.
Bunn, F., Goodman, C., Manthorpe, J., Durand, M., Hodkinson, I., Rait, G., Millac, P., Davies, S., Russell, B. and Wilson, P. (2016). Supporting shared decision-making for older people with multiple heath and social care needs: a protocol for a realist synthesis to inform integrated care models. BMJ Open [Online] 7:1-8. Available at: http://dx.doi.org/10.1136/bmjopen-2016-014026.
Wilson, P. and Abrahamson, V. (2018). Evaluation of West Kent Clinical Commissioning Group Clinical Microsystems Programme for General Practice. University of Kent.
Hamilton-West, K., Bates, A., Hotham, S. and Wilson, P. (2017). Improving Competencies of PWPs/Counsellors to Work With People With Long-Term Conditions: Final Report. University of Kent.
Coward, M., Crombie, A., Joy, M., Ream, E., Tremblay, M. and Wilson, P. (2016). Primary Care Strategic Workforce Planning Programme. University of Kent. Available at: https://www.kent.ac.uk/chss/docs/Future_workforce_in_primary_community_care.pdf.
Research report (external)
Hill, E., Mikelyte, R., Abrahamson, V. and Wilson, P. (2018). Exploration of the Factors Influencing Opioid Prescribing As Regular Pain-Management Medication for Older People. CHSS: Canterbury.
Conference or workshop item
Brigden, C., Goodwin, M., Sisbury, G., Rees-Roberts, M., Butler, C., Greene, K., Hayes, C., Hashem, F., Gage, H., Williams, P., Wee, B., Barclay, S., Wilson, P. and Mikelyte, R. (2018). Patient and Public (PPI) Involvement in Hospice research: an example of co-production in action. In: National Association for Hospice at Home Annual Conference 2018.
Abrahamson, V. and Wilson, P. (2018). Health & Well-being post-stroke: what is the role of the six-month review?. In: International Symposium: Transforming Community and Public Health. Swansea, Wales. Available at: http://www.swansea.ac.uk/humanandhealthsciences/.
Rees-Roberts, M., Mikelyte, R., Hayes, C., Hashem, F., Brigden, C., Gage, H., Williams, P., Greene, K., Wee, B., Barclay, S., Wilson, P. and Butler, C. (2017). Optimum Hospice at Home Services for End of Life Care (OPEL H@H): Results of survey data from hospice at home services in England. In: National Association for Hospice at Home Annual Conference 2017.
Keenan, J., Poland, F., Wilson, P., Mathie, E., Boote, J., Varley, A., Wythe, H., Wellings, A., Vicary, P., Cowe, M., Munday, D. and Howe, A. (2017). Research design boundaries for qualitative research, stakeholder and patient and public involvement, and why they matter. In: 3rd UCL Qualitative Health Research Symposium 2017. BMJ. Available at: http://dx.doi.org/10.1136/bmjopen-2017-016492.40.
Abrahamson, V. (2017). How Does the Review Process Support Adults in the First Year Post-Stroke?.
A Realist Evaluation of Autism ServiCe Delivery (RE-ASCeD): Which diagnostic pathways work best, for whom and in what context? Protocol for a rapid realist review (2020). BMJ Open [Online]. Available at: https://journals.bmj.com/.
Abrahamson, V., Jaswal, S. and Wilson, P. (2020). An evaluation of the clinical microsystems approach in general practice quality improvement. Primary Health Care Research & Development [Online]. Available at: http://dx.doi.org/10.1017/S1463423620000158.
Hamilton-West, K., Bates, A., Hotham, S. and Wilson, P. (2018). Development and Evaluation of a Long-Term Conditions Training Programme for Primary Care Mental Health Workers. In: European Health Psychology Society Conference.
Showing 25 of 88 total publications in KAR. [See all in KAR]
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Last Updated: 17/01/2018